The Ethics and Governance of Human Genetic Databases 2024 pdf epub mobi 电子书

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发表于2024-11-24

The Ethics and Governance of Human Genetic Databases 2024 pdf epub mobi 电子书

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出版者:Cambridge Univ Pr

作者:Hayry, Matti (EDT)/ Chadwick, Ruth (EDT)/ Arnason, Vilhjalmur (EDT)/ Arnason, Gardar (EDT)

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页数:296

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出版时间:2009-3

价格:$ 141.25

装帧:HRD

isbn号码:9780521856621

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The Ethics and Governance of Human Genetic Databases 2024 pdf epub mobi 电子书图书描述

The Medical Biobank of Umea in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics and medicine, exploring interaction between genes, lifestyle, environmental factors and health and diseases. The collection, storage and use of this data raise ethical, legal and social issues. In this book, first published in 2007, bioethics scholars examine whether existing ethical frameworks and social policies reflect people's concerns, and how they may need to change in light of new scientific and technological developments. The ethical issues of social justice, genetic discrimination, informational privacy, trust in science and consent to participation in database research are analyzed, whilst an empirical survey, conducted in the four countries, demonstrates public views of privacy and related moral values in the context of human genetic databases.

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