The Reason I Jump

作者简介：东田直树（Naoki Higashida），1992年出生于日本千叶县，5岁时被诊断出有重度自闭症。他曾获得21世纪未来博览会未来之梦大奖，以及第四、五届格林童话奖中小学年级的大奖，从此获奖无数。日本NHK、朝日新闻、日本电视台、富士电视台、东京电台、东京新闻、每日新闻等媒体都对其进行过广泛的报导。东田直树著有多部著作，现在仍持续写作，不断努力为自闭症群体发声。绘者简介：张汉，南京人，大家都称他“大宝”，3岁被诊断为自闭症，5岁后学习绘画，并坚持至今。十几年的康复训练和父母耐心的教导，让大宝发生了翻天覆地的变化。目前大宝的画作已在山东、浙江、重庆等十多个地区展出。2015年12月曾在上海合作组织招待年会上与郎朗同台献艺。

出版者:Random House

作者:Naoki Higashida

页数:176

译者:David Mitchell

出版时间:2013-8-27

价格:USD 22.00

装帧:Hardcover

isbn号码:9780812994865

图书标签:自闭症心理学日本autismPsychologyDavidMitchell随笔英文原版

You’ve never read a book like The Reason I Jump . Written by Naoki Higashida, a very smart, very self-aware, and very charming thirteen-year-old boy with autism, it is a one-of-a-kind memoir that demonstrates how an autistic mind thinks, feels, perceives, and responds in ways few of us can imagine. Parents and family members who never thought they could get inside the head of their autistic loved one at last have a way to break through to the curious, subtle, and complex life within.

Using an alphabet grid to painstakingly construct words, sentences, and thoughts that he is unable to speak out loud, Naoki answers even the most delicate questions that people want to know. Questions such as: “Why do people with autism talk so loudly and weirdly?” “Why do you line up your toy cars and blocks?” “Why don’t you make eye contact when you’re talking?” and “What’s the reason you jump?” (Naoki’s answer: “When I’m jumping, it’s as if my feelings are going upward to the sky.”) With disarming honesty and a generous heart, Naoki shares his unique point of view on not only autism but life itself. His insights—into the mystery of words, the wonders of laughter, and the elusiveness of memory—are so startling, so strange, and so powerful that you will never look at the world the same way again.

In his introduction, bestselling novelist David Mitchell writes that Naoki’s words allowed him to feel, for the first time, as if his own autistic child was explaining what was happening in his mind. “It is no exaggeration to say that The Reason I Jump allowed me to round a corner in our relationship.” This translation was a labor of love by David and his wife, KA Yoshida, so they’d be able to share that feeling with friends, the wider autism community, and beyond. Naoki’s book, in its beauty, truthfulness, and simplicity, is a gift to be shared.

Advance praise for The Reason I Jump

“ The Reason I Jump is awise, beautiful, intimate and courageous explanation of autism as it is lived every day by one remarkable boy. Naoki Higashida takes us ‘behind the mirror’—his testimony should be read by parents, teachers, siblings, friends, and anybody who knows and loves an autistic person. I only wish I’d had this book to defend myself when I was Naoki’s age.” —Tim Page, author of Parallel Play and professor of journalism and music at the University of Southern California

读后感

For people with autism, the harder part of life is to be understood by others rather than themselves, which is quite contrary to people that are thought to be normal.  

妈妈过世前曾有过因为一块很小的鸭子肉堵住食道不能进食的情况。当时我觉得非常不可理解，食道真的可以出现被塞到连水都浸不下去的情况吗？妈妈25小时滴水未进的经历让我深刻感受到那份习以为常的简单进食居然也可以成为一份遥不可及的奢望。这让我知道，在这个世界上，因为我...  

妈妈过世前曾有过因为一块很小的鸭子肉堵住食道不能进食的情况。当时我觉得非常不可理解，食道真的可以出现被塞到连水都浸不下去的情况吗？妈妈25小时滴水未进的经历让我深刻感受到那份习以为常的简单进食居然也可以成为一份遥不可及的奢望。这让我知道，在这个世界上，因为我...  

我想每一个身边没有自闭症的读者，打开这本书的心情和目的应该是类似，那就是对于这样一个群体的好奇。最开始知道自闭症或者说孤独症，是因为一部叫雨人的电影。当时对电影中的哥哥那样奇怪的行为与某些方面超乎常人的地方有着强烈的好奇。自闭症不是疾病，是一种障...

《我想飞进天空》这书是几个月之前看的了，因为好奇打开这本书，好奇自闭症人到底怎么想的？或者说他们有思想吗？他们怎么生活？看完之后是感动，是理解，是尊重。 几分钟前正对着电脑屏幕，心中一万头草泥马呼啸而过着。看到手边这本书，又拿起来翻着，心也慢慢平静下...  

用户评价

自闭症患儿创作的故事/问答集，作者很努力地解释他的“真实想法”。自闭症虽然差异很大，但黑盒子至少被打开了一点，这本书的存在就是它最大的价值。

更新：看了NHK纪录片，看到作者如何交流，发现他非常聪明。看到大脑检查显示是他的弓状束（连接语言理解区域和表达区域的神经集）出现异常导致不能正常说话，而他右脑承担意图理解能力的区域比常人要大，因有优于常人的表现力。如此看来，他能写出这本书毫无意外。我之前的质疑是狭隘、不客观的。感谢作者让更多人了解自闭儿的内心世界，重度自闭能有如此写作水平简直是奇迹。 原评论：作为长期接触自闭症小朋友的志愿者，本意是想通过此书了解这些孩子的内心想法。尽管非常努力希望能客观公正，依然很难相信一位有学习障碍、社交障碍、无语言沟通能力、年仅十三岁的小朋友如何对生活、对人生、对世界有如此深刻的见解以致曾读万卷书行万里路识万般人的成年人自愧不如？很赞同亚马逊一评论，这本书更像是出自一有自闭症孩子的中年家长之手

#无论真假 都很真实

其实没想象中的好。不过如果是家里有autism的小孩的话，应该会很有帮助。

书很薄一小时读完，在国外爆红后引发争议，有人认为一个13岁孩子不应该能够讲清楚自闭症这件事。全书弥漫着一种“我们自闭得很正常，请不要放弃我们，不要放弃我们，不要放弃我们”的恳求的基调。也许是日本孩子的缘故，写出来的感觉是“我怕给你们添麻烦，我知道我在给大家添麻烦，但不要放弃我“